Friends and Supporters,
We are overwhelmed at your support for rare diseases. With your support, we raised awareness for 5 different rare diseases across 10 different states and 2 countries. We hope you were inspired by the stories we told and share the hope, love, perseverance, faith, and resilience these kids show us every day.
In addition to the raised awareness, we raised $10,500! Courtney and I are happy to match every dollar you gave, bringing us to a total of $21,000! This represents $1,500 for each story we told you. We are so grateful for your support. This money will go directly to fund additional research to find therapeutic treatments on our way to a cure for Schaaf-Yang Syndrome. As I said in one of the stories, real progress is being made by your generous donations.
Thank you to all our families who participated in this campaign and sharing your beautiful children with all of us. And most of all, thank you to all these wonderful children for changing lives and bringing joy to the world!
With love,
Matt and Courtney
