Faith for Hayden is a non-profit organization that was created in honor of Hayden Faith Blickley.  Hayden was born with Schaaf-Yang Syndrome, a rare genetic disorder, on November 5, 2021. Our mission is raise awareness to Schaaf-Yang Syndrome by sharing the blessing of Hayden Faith and to improve the lives of people living with with the syndrome through the advancement of research.

Schaaf-Yang Syndrome (“SYS”) is a rare genetic disorder caused by a disruption in a gene on chromosome 15. Since its discovery in 2013, there have only been a couple hundred confirmed cases worldwide.