Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.  Since its creation in 2008, Rare Disease Day has played a critical part in building an international rare disease community that is multi-disease, global, and diverse– but united in purpose.  Rare Disease Day is observed every year on February 29th (or 28th in non-leap years)—the rarest day of the year.

A rare disease is defined as impacting less than 1 in 2,000 people.  Worldwide, there are over 300 million people living with a rare disease with 72% of rare diseases are genetic disorders.

Schaaf-Yang Syndrome is one of those rare diseases with only 250 diagnosed cases worldwide.  In fact, Hayden’s is the only known patient to have her specific mutation in the MAGEL2 gene.  Please consider donating to Faith for Hayden this Rare Disease Day to make progress in research on Schaaf-Yang Syndrome.

Read more about Rare Disease Day at www.rarediseaseday.org

Donate now at www.faithforhayden.org/donate