It’s hard to believe we are on year three of our annual celebration!  This celebration was the biggest and best yet!  We had over 175 friends join us to support Hayden and Schaaf-Yang Syndrome research.  We raised an overwhelming $110,000 from your generous support!  We can’t thank you or express enough gratitude.  The support we have been shown continues to overwhelm us and provides hope to Hayden and others with SYS, like Emma, who joined us for our celebration.

We hope you were able to see what your donations and support have done for Hayden and the advancement of SYS research.  We firmly believe the support of our community, including everyone that joined or supported us on Saturday night is responsible for the amazing progress Hayden has made in her first 3 years of life.  We also hope that Dr. Schaaf and Dr. Gilmore’s message give you confidence that what we are doing is working and the next wave of understanding and advancements are within reach.  All of this is made possible by YOU!

We would also like to thank our sponsors again for their generous support.  These gifts and endorsement makes the success of the event possible.  We also would like to thank Smokin’ Gunn (https://www.sgb.rocks/) for providing the entertainment for the night – which added to an already lively night!

With love and gratitude,

Matt and Courtney